Reading

Suggested News Articles

Corbet, Barry, "Physician Assisted Death: Are We Asking the Right Questions?" New Mobility Magazine, May 2003.

Spiers, Paul A., "To Choose or Not To Choose" New Mobility Magazine, November 2002.

Coleman, Diane, "Hemlock and 'Choice'" (PDF) New Mobility Magazine, June 2003.

Mayo, David J. and Gunderson, Martin, "Vitalism Revitalized" (PDF) Hastings Center Report, July-August 2002.

Gunderson, Martin and Mayo, David J., "Restricting Physician-Assisted Death to the Terminally Ill" (PDF) Hastings Center Report, November-December 2002.

Crigger, Bette-Jane, "From the Editor" (PDF) Hastings Center report, November-December 2002.

Letters to the editor (PDF) Hastings Center report, November-December 2002.

Batavia, Andrew I., Letter to the Editor: "Assistance in death is not a message that life isn't worth living" American Medical News, October 14, 2002. Read

Batavia, Andrew I., Letter to the Editor: "Respect Choice to Die," New Mobility Magazine, October 2002.

Batavia, Andrew I. and Gallagher, Hugh Gregory, "AUTONOMY vs. Not Dead Yet: Support for Right to Assisted Dying," New Mobility Magazine, August 2002.

Coleman, Diane, "AUTONOMY vs. Not Dead Yet: Acceptable Losses?," New Mobility Magazine, August 2002.

Brantley, McKinzie, "Autonomy promotes choice, supports right-to-die," iCan News Service, August 7, 2002.

Batavia, Andrew I., "For autonomy in life and death," The Oregonian, April 23, 2002.

Publications by AUTONOMY Directors

The following is a partial list of the publications of the founders and officers of AUTONOMY. These publications, which are directly related to the autonomy and self-determination of people with disabilities, do not necessarily reflect the positions of the organization. They are provided to offer the individual views of those who founded and who direct AUTONOMY, and to provide background information on a variety of issues that relate to the autonomy of people with disabilities.

Books

Batavia, A.I. Independent Living: A Viable Option for Long-term Care, ABI Professional Publications, Clearwater, FL (forthcoming, 2002).

Gallagher, H.G. By Trust Betrayed: the License to Kill in the Third Reich, revised edition. Arlington, Vandamere Press, 1995.

Gallagher, H.G. FDR's Splendid Deception: The Moving Story of Roosevelt's Massive Disability-And the Intense Efforts to Conceal It from the Public, third edition. Arlington, Vandamere Press, 1999.

Gallagher, H.G. Black Bird Fly Away: Disabled in an Able-Bodied World. Arlington, Vandamere Press, 1998.

Gray, D.B., Quatrano, L.A., Lieberman, M.L., eds. 1998. Designing and Using Assistive Technology: The Human Perspective. Baltimore: Brookes Publishing.

Halstead, L.S. (Ed.) 1998. Managing Post-Polio: A Guide to Living Well With Post-Polio Syndrome. Washington: NRH Press, 1998.

Haseltine F., Cole S., Gray D.B., eds. 1993. Reproductive Issues for Persons with Physical Disabilities. Baltimore: Brookes Publishing.

Chapters in Books

Batavia, A.I. 2000. "Ten Years Later: The Americans With Disabilities Act and the Future of Disability Policy," in L. Francis and A. Silvers (ed.), Americans with Disabilities: Exploring the Implications of the Law for Individuals and Institutions, New York: Routledge Press, 283-292.

Batavia, A.I. 1996. "Health Care, Personal Assistance, and Assistive Technology: Are In-Kind Benefits Key to Independence or Dependence for People with Disabilities?," In Disability, Cash Benefits and Work, J.L. Mashaw, et al., (eds.), Kalamazoo, MI: W.E. Upjohn Institute for Employment Research.

Batavia, A.I. 1996. “Public Accommodations” in Implementing the Americans with Disabilities Act, West, J. (ed.)., Cambridge, MA: Milbank Memorial Fund, Blackwell Publishers, Inc.

Gallagher, H.G. 1995. "Growing Old with Polio: A Personal Perspective." In Halstead, L. and Grimby, G. eds.: Post Polio Syndrome. Philadelphia, 1995, p.215.

Gallagher, H.G. 1998. "From Manual to Electric: A Transition." In Halstead, L. ed.: Managing Post-Polio: A Guide to Living Well with Post-Polio Symptoms. Washington, DC, NRH Press, 1998, p. 209.

Gallagher, H.G. 1997. "Holocaust: Disabled People." In Totten, S. et al eds.: Century of Genocide: Eyewitness Accounts and Critical Views. New York, Garland Publishing Inc. 1997, p.208.

Gallagher, H.G. "Slapping Up Spastics." Berenbaum, M. et al eds: The Holocaust and History: The Known, The Unknown, The Disputed and The Reexamined. Washington, United States Memorial Museum/University of Indiana Press, 1998, p.327.

Gray, D.B., Morgan, K.A., Hollingsworth, H.H.: (accepted) "Independent Living and Assistive Technology: Work Context." Rehabilitation Education 2002.

Gray, D.B. (ed.). 1993. Reproductive Issues for Persons With Physical Disabilities. Baltimore, MD, Brooks Press, 1993, 311-330.

Gray, D.B., Evans C., Rocco F., Heddle B1J. 1980 "Educational options for the developmentally disabled." In McCormack M, Sciorra LJ, Ming-Ling L, eds. Prevention of Mental Retardation and Other Developmental Disabilities. New York: Decker; 1980.

Halstead, L.S. 1994. "Aging with a Disability: Poliomyelitis." In Rehabilitation of the Aging and Older Patient, Felsenthal, G; Garrison, SJ; Steinberg, FU (Eds), Baltimore: Urban & Schwarzenberg, 1994, 415-25.

Halstead, L.S. 1985. "Sexuality and Disability." In Halstead and Grabois (Eds.), Medical Rehabilitation. New York: Raven Press, 1985, 325-333.

Halstead, L.S., Carter, R.E. 1985. "Spinal Cord Injury." In Halstead and Grabois (Eds.), Medical Rehabilitation. New York: Raven Press, 1985, 219-234.

Halstead, L.S. 1984. "Sexuality and Disability." In Krueger, D.W. (Ed.), Emotional Rehabilitation of Physical Trauma and Disability. New York: SP Medical and Scientific Books, 1984, 235-252.

Stein, M. 2002. "From Plessy (1896) and Goesart (1948) to Cleburne (1985) and Garrett (2001): A Chill Wind From the Past Blows Equal Protection Away" in Linda Hamilton Krieger, ed., Backlash Against the Americans with Disabilities Act: Interdisciplinary Perspectives (University of Michigan Press 2002) (with Anita Silvers).

Stein, M. 2001. "Disability and Post-ADA Employment Effects: Alternative Approaches to Traditional Economic Analysis" in L. Robert McConnell ed., Emerging Workforce Issues: W.I.A., Ticket to Work, and Transition 95 (National Rehabilitation Association 2001).

Stein, M. 2000. "Employing People with Disabilities: Some Cautionary Thoughts for a Second Generation Civil Rights Statute." In Peter David Blanck (ed.), Employment, Disability, and the Americans with Disabilities Act: Issues in Law, Public Policy, and Research 51 (Northwestern University Press 2000).

Stein, M. 2000. "Market Failure and ADA Title I" in Leslie Pickering Francis & Anita Silvers (eds.), Americans with Disabilities: Exploring Implications of the Law for Individuals and Institutions 193 (Routledge Press 2000).

Articles in Law Journals

Batavia, A.I. 2001. “A Right to Personal Assistance Services: ‘Most Integrated Setting Appropriate’ Requirements and the Independent Living Model of Long-term Care,” American Journal of Law and Medicine 27(1): 17-43.

Batavia, A.I. 2000. “So Far, So Good: Observations on the First Year of the Oregon Death with Dignity Act,” in Special Theme Issue: Hastened Death, G. Andrew H. Benjamin, James L. Werth, Jr. & Lawrence Gostin (eds.), Psychology, Public Policy and Law 6(2): 291-305.

Batavia, A.I. 2000. “The Relevance of Physician and Disability Data on the Right to Physician-Assisted Suicide: Can Studies Resolve the Issue?,”in Special Theme Issue: Hastened Death, G. Andrew H. Benjamin, James L. Werth, Jr. & Lawrence Gostin (eds.), Psychology, Public Policy and Law 6(2): 546-558.

Batavia, A.I. 1998. Comments by Andrew I. Batavia in “Conference: Socially-Assisted Dying: Media, Money and Meaning,” Cornell Journal of Law and Public Policy, 7(2): 273-78, 292-93, 348-49, 394-963, Winter 1998.

Batavia, A.I., G. DeJong, and L. McKnew. 1991. "Toward a National Personal Assistance Program: The Independent Living Model of Long-Term Care for Persons with Disabilities," Journal of Health Politics, Policy and Law 16(3): 523-545.

Stein, M. "Conceptions of Disability," William & Mary L. Rev. (2002) (with Anita Silvers).

Stein, M. "Disability as Capability," Berk. J. Emp. & Lab. L. (2002) (with Anita Silvers).

Stein, M. 2002. "Protecting Genomics' Promise: An Equality Paradigm for Preventing Discrimination Based on Genetic Identity," Va. J. Soc. Pol'y. & L. (2002) (with Anita Silvers).

Stein, M. 2002. "Human Rights and Genetic Discrimination: Protecting Genomics' Promise for Public Health," J. L. Med. & Ethics (2002) (with Anita Silvers).

Stein, M. 2002. "War, Society, and Disability: Some Thoughts on Applying Under-Utilized Methodologies," J. Transnat'l. L. & Contemp. Prob. (2002).

Stein, M. 2000. "Labor Markets, Rationality, and Workers with Disabilities," 21 Berk. J. Emp. & Lab. L. 314.

Stein, M. 1994. "From Crippled to Disabled: The Legal Empowerment of Americans With Disabilities," 43 Emory L.J. 24.

Stein, M. 1994. "Mommy Has a Blue Wheelchair: Recognizing the Parental Rights of People With Disabilities," 60 Brooklyn L. Rev. 1069.

Articles in Refereed Journals

Batavia, A.I. “Consumer Direction, Consumer Choice and the Future of Long-term Care,” Journal of Disability Policy Studies (in press).

Batavia, A.I. 2001. "The Ethics of PAS: Morally Relevant Relationships Between Personal Assistance Services and Physician-Assisted Suicide." Archives of Physical Medicine and Rehabilitation, 2001;12 Suppl 2:S25-31.

Batavia, A.I. 2001. “Are People with Disabilities an Oppressed Minority, and Why Does This Matter?” in (Batavia, AI, guest editor) Special Issue on Oppression and Disability, Journal of Disability Policy Studies, 12(2): 66-67 (Fall 2001).

Batavia, A.I. 2001. “The New Paternalism: Characterizing People with Disabilities as an Oppressed Minority,” in (Batavia, AI, guest editor) Special Issue on Oppression and Disability, Journal of Disability Policy Studies, 12(2): 107-13 (Fall 2001).

Batavia, A.I. 1998. "The Prospects for a National Personal Assistance Services Program for People With Disabilities," American Rehabilitation,” 24 (3), Winter 1998.

Batavia, A.I. 1997. “Disability and Physician-Assisted Suicide." The New England Journal of Medicine, 336(23): 1671-73, June 5, 1997.

Batavia, A.I. 1997. “Ideology and the Independent Living Movement: Will Conservatism Harm People with Disabilities?" The Annals of the American Academy of Political and Social Science, 549: 10-23, January 1997.

Batavia, A.I., and S. Parker. 1995. "From Disability Rolls to Payrolls: A Proposal for Social Security Program Reform," Journal of Disability Policy Studies 6(1): 73-86, August 1995.

Batavia, A.I. 1993. "Relating Disability Policy to Broader Public Policy: Understanding the Concept of Handicap," Policy Studies Journal. 21(4): 735-39.

Batavia, A.I., G. DeJong, and L. McKnew. 1991. "Toward a National Personal Assistance Program: The Independent Living Model of Long-Term Care for Persons with Disabilities," Journal of Health Politics, Policy and Law 16(3): 523-545.

Batavia, A.I. 1991. "A Disability Rights/ Independent Living Perspective on Euthanasia," The Western Journal of Medicine 154: 616-17, May 1991.

Batavia, A.I., and G. Hammer. 1991. "Toward the Development of Consumer-Based Criteria for the Evaluation of Assistive Devices," Journal of Rehabilitation Research and Development, 27(4): 425-36, 1991.

Batavia, A., Halstead, L., DeJong, G., & Smith, Q. 1988-89. "Primary Medical Services for People with Disabilities," American Rehabilitation, Winter 1988-89, pp. 9-12, 26.

DeJong, G., A.I. Batavia, and L. McKnew. 1992. "The Independent Living Model of Personal Assistance in National Long-Term-Care Policy," Generations Winter 1992: 89-95. Reprinted in Aging and Disabilities: Seeking Common Ground (E.F. Ansello and N.F. Eustis, Eds.), New York: Baywood Publishing Co., 1993.

DeJong, G., and A.I. Batavia. 1990. "The Americans With Disabilities Act and the Current State of Disability Policy," Journal of Disability Policy Studies, 1(3): 65-75, Fall 1990.

Gallagher, H.G. 2001. “What the Nazi ‘Euthanasia’ Program Can Tell Us About Disability Oppression,” in (Batavia, AI, guest editor) Special Issue on Oppression and Disability, Journal of Disability Policy Studies, 12(2): (Fall 2001).

Gallagher, H.G. "The Persistence of Social Attitudes toward People with Disabilities." Issues in Law & Medicine v.10:4:401-414.

Gray, D.B. 1990. "Disability and Rehabilitation from Policy to Program: A Personal Perspective." American Psychologist 45(6): 751 - 756.

Halstead, L.S., Seager, S.W.J., Houston, J.M. 1992. "New Insights Into the Fertility Potential of SCI Men. Abstract." J Am Para Soc 15(2): 96, 1992.

Halstead, L.S., Rossi, C.D. 1985. New Problems in Old Polio Patients: Results of a Survey of 539 Polio Survivors," Orthopedics 8(7): 845-850, July, 1985.

Halstead, L.S., Damon, M., Zatlin, C., Hanover, D., Bohlen, D. 1982. "Sit Time Monitor: A Device for Measuring Wheelchair Sitting Time." Amer. Journal of Occupational Therapy 36(7):463-465, 1982.

Reports (and other papers)

Batavia, A.I. 1999. "The Role of Independent Living Centers in Meeting the Health Care Needs of People with Disabilities," Houston, Texas: Independent Living Resource Utilization, 1999.

National Academy on Aging, Advisory Panel Report on the Future of Community-Based Long-Term Care. 1994. (Batavia served as member of the advisory panel), The Maxwell School of Citizenship and Public Affairs, Syracuse University, Syracuse, New York, October 1994.

National Council on Disability. 1993. (Batavia, A.I., Executive Director) Study on the Financing of Assistive Technology and Services for Individuals with Disabilities -- A Report to the President and the Congress, Washington, DC: NCD, March 4, 1993.

Non-Refereed Journal Articles

Batavia, A.I. 1995. "Empowering People with Disabilities: The Road to Healthcare Reform," Healthcare Trends and Transitions 6(3): 8-13, January 1995.

Newspaper Articles

Batavia, A.I. 2001. "Ashcroft and Oregon’s Death with Dignity Act: Action threatens the GOP" The Miami Herald, Page 7B, December 11, 2001.

Batavia, A.I. 1997. "Should disabled people support a legal right to doctor- assisted suicide?" The Miami Herald, Page 2C, April 22, 1997.

DeJong, G., and A.I. Batavia. 1990. "Next Step for The Disabled," Washington Post (p. A19), July 28, 1990; reprinted in Horizons 3(11): 4, November 1990.

Other Publications (including letters to the Editor and Book Reviews)

Batavia, A.I. 2002. "Even Playing Field for Consumer-Directed Long-term Care." Health Affairs 21(1): 271 (Letter to the Editor).

Batavia, A.I. 2001. “A Call for Civility in the Disability/Assisted Suicide Debate,” Psychology, Public Policy and Law 7(3): 728 (Letter to the editor).

Batavia, A.I. 2001. “Don’t Use Scare Tactics in Assisted Death Debate,” Times Union, March 30, 2001 (Letter to the editor).

Batavia, A.I. , S. Helig, C. Holden, D.S. Miller, T.E. Quill, B. Rollin, and C. Ross. 1999. Choices at Life’s End. San Mateo, California: Death with Dignity National Center.

Batavia, A.I. 1997. “Response from Batavia” (Letter to editor responding to Disability and Physician-Assisted Suicide correspondences), The New England Journal of Medicine, 337(25): 1853, December 25, 1997.

Batavia, A.I. 1991. "Caring Through Personal Assistance Policy: A Response," Journal of Health Politics, Policy and Law 16(4).

Batavia, A.I., D. Dillard, and B. Phillips. 1990. "How to Avoid Technology Abandonment," Proceedings of the Fifth Annual Conference on Technology and Persons with Disabilities (ed. Harry Murphy), Los Angeles, CA, California State University at Northridge, March 21-24, 1990.

Batavia, A.I. and G. Hammer. 1990. "Developing Consumer Criteria for Evaluating Assistive Devices," Rehabilitation R & D Progress Reports 1989 (26)1: 464-65, February 1990.

Batavia, A.I. and G. Hammer. 1989. Consumer Criteria for Evaluating Assistive Devices: Implications for Technology Transfer," Proceedings of the 12th Annual Conference of the Rehabilitation Engineering Society of North America, June 1989.

DeJong, G., A.I. Batavia, T.J. Burns, G. Markert, and M. Meehan. 1990. "Health Insurance-Related Work Disincentives for SSDI Beneficiaries," Rehabilitation R & D Progress Reports 1989 (26)1: 469, February 1990.

Halstead, L.S., Halstead, M.G., Salhoot, J.T., Stock, D.D., & Sparks, R.W. 1976. "Sexual Attitudes, Behavior and Satisfaction for Able-Bodied and Disabled Participants Attending Workshops in Human Sexuality. Abstract. Arch Phys Med Rehabil 57(11): 535, November, 1976.

Halstead, L.S., Wiechers, D.O. Rossi, C.D. 1984. "Late Effects of Poliomyelitis: New Problems in Old Patients. Abstract." Arch Phys Med Rehabil 65: 641, 1984.

Stein, M. 2002. "Americans With Disabilities Act" in Dictionary of American History (3rd ed.) (2002) (with Paul Longmore).

Stein, M. 2002. "Discrimination: Disability" in Dictionary of American History (3rd ed.) (2002).

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